Our small community has grown dramatically over the past few years via email, Facebook, and video calls. The time has come to take the next step, and create a website!
This site will be a resource to share information for patients and practitioners, with an introduction to KPTN mutation, research updates, family profiles, and more.
The blog will be updated as often as possible to share new news and updates from families. We’ve also secured the “KPTN Alliance” pages across several platforms such as Twitter, Instagram, Reddit, and YouTube to host content and discussions.
We look forward to communicating with you as our community grows!
All the best,
David, Cara, and Audrey